I peered over the sloping back of the couch, vision divided between peacock patterned fabric and white doorway. My mother blindly cupped his greasy cheek in her prematurely wrinkled hand. She saw past so much.
“Mister Ben Siedmannn, can you say mama? I’m your ma…? Ma!”
“That’s right Ben jammin, I’m your mama.”
It occurred to me that I don’t think he knows my name. It’s been a few years since he said anything new, and even more years since he wrote something on paper. It’s not his fault that little sisters who play with Barbie dolls and obsess over horses aren’t the priority of his unfinished mind. But I can’t remember hearing his beautiful, horrible tongue say Isabelle.
This blog is by Chloey Rudy, an 8th grader that I met while competing at the Florida Future Problem Solving competition in March. While many people were interested in hearing about my project, Chloey had a special connection. After telling her about the website, she shared her experiences as a… Read More
Yesterday, the Cure Sanfilippo Foundation launched an awareness campaign about my dog, Henry, and his relationship with Blair. My sister, Blair, and Henry were best friends and he misses her so much ever since she passed away due to Sanfilippo in 2017. Learn more about their one of a kind bond in this video and share to raise awareness for Sanfilippo Syndrome. Read More