11.12.07


I peered over the sloping back of the couch, vision divided between peacock patterned fabric and white doorway. My mother blindly cupped his greasy cheek in her prematurely wrinkled hand. She saw past so much.

“Mister Ben Siedmannn, can you say mama? I’m your ma…? Ma!”

“Mahm”

“That’s right Ben jammin, I’m your mama.”

It occurred to me that I don’t think he knows my name. It’s been a few years since he said anything new, and even more years since he wrote something on paper. It’s not his fault that little sisters who play with Barbie dolls and obsess over horses aren’t the priority of his unfinished mind. But I can’t remember hearing his beautiful, horrible tongue say Isabelle.


Image for We Stay Home for Carter.

We Stay Home for Carter.

Due to the Coronavirus, many have been social distancing for weeks now. Staying home is much more critical for kids like Carter, who has Sanfilippo Syndrome. Here's how the Sarkar's lives have changed because of the Coronavirus - and why you should stay home for Carter. Read More

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Finding the Unity in Disability

If I don’t have a topic in mind when it’s time to write a column, I read articles. I look into the lives of other siblings of special needs individuals, delving into the struggles, pains, and joys of their respective experiences. From this, I usually find something that I can relate to in my own life, and I let the writing guide me to my own ideas. Read More

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