ANNOUNCEMENT


I am very excited to announce that I will be starting a quarterly newsletter to keep siblings updated on The B.L.A.I.R. Connection. The newsletter will include blog ideas, surveys, giveaways, and more! Whether you’re a sibling or a parent, this is a great way to stay in the loop with opportunities for siblings of the terminally ill.

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When Super Sibs Meet

What happens when the siblings of kids with the same terminal illness meet? I can say from experience, it’s awesome. No matter your age or interests, you immediately become best friends.  At this year’s MPS Conference, I had the opportunity to meet several siblings. I didn’t get to… Read More

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With The New Year Comes Difficult Feelings

Jan. 1 always brings up difficult feelings for me. Even before Sanfilippo syndrome entered our lives, New Year’s was a holiday for reflection — which isn’t necessarily an easy thing to process. Each year, thoughts about what the coming year has in store flood my mind. Read More

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