Blogs by Leslie

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Like a Rock in Your Pocket

Looking at the world of rare diseases and serious illnesses in children, so much of the focus jumps to the child with the diagnosis, and then to the parents. This isn’t intentional, it’s just the way it seems to work. Bit by bit, it’s easy for siblings to slip into the sidelines, away from the “front and center” of the attention that comes with a difficult diagnosis. Read More