Blogs by Stefanie

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How is Ellie?

This piece is by Stefanie Boyce, mother of Ellie, Jayden, & Brooklyn. Jayden & Brooklyn passed away due to Sanfilippo Syndrome and Ellie is six years old, unaffected, and coping with the loss of her brother and sister. Your face changes when you ask me how Ellie is doing. I’m not sure if it’s because she’s so young, because it’s the easiest question to ask out of a sea of difficult ones, or because you are generally curious. How does a little six-year-old as bright and full of life as Ellie handle her brother and sister dying? Read More