Go Higher


One gene

One cell

One little mishap

One gone wrong

None goes well

 

The disease

The struggle

Come together

Make their lives

For the better

 

A very sticky situation

Has been placed

on our own selves

This is the rare redirection

That destroys our sibling’s health

 

Their loss

Make it good

Make it whatever they dream

It’s not yours

But it will help them

Do it for them

 

The end may be approaching

For them and your soul

But they go towards the north

They’ll go higher up

They’ll be the ones to make others look up.


Image for With The New Year Comes Difficult Feelings

With The New Year Comes Difficult Feelings

Jan. 1 always brings up difficult feelings for me. Even before Sanfilippo syndrome entered our lives, New Year’s was a holiday for reflection — which isn’t necessarily an easy thing to process. Each year, thoughts about what the coming year has in store flood my mind. Read More

Image for My Viral Mission

My Viral Mission

On December 21st, I started my mission to go viral. I posted daily for the next two weeks, and while I’m not viral yet, I wanted to share some of the videos I’ve been posting and the progress that I’ve made. Read More

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