Grey’s Presentation on Sibling Support


On Monday, February 4th, I had the opportunity to speak in front of doctors, scientists, and lysosomal disease families about sibling support. In the presentation, I share more about my journey as a sibling and my inspiration to start this website. Additionally, I go into depth about current sibling support programs and why there is a need for new ones.

Watch my presentation:

 


Image for Father’s Day

Father’s Day

Rebecca is big sister to 10-year-old Amanda who suffers from a rare form of epilepsy. The family travels far from home with assistance from Miracle Flights, the nation’s leading nonprofit flight organization, to reach the specialized care she needs to get well. Read More

Image for My Sister’s Funeral

My Sister’s Funeral

I always knew that without a cure, my sister’s time with us would be limited. And with this inevitable loss of my sweet Blair, there would be a funeral. While our family always aimed to think positively about Blair’s illness, this is the only detail about the end of her life that came to my mind often in the years before her passing. Read More

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