On December 20th, I had the opportunity to speak to MPS siblings from all over the country. I discussed my journey as a sibling, my fundraising, the website, and my regrets about certain blogs. Watch the powerful and emotional speech below!
My Viral Mission
My new Tik Tok account got a sneak peek of this blog before it was published! I’m hoping to reach more siblings by posting short & powerful videos and trying to go “viral.” If you’d like to help my viral mission, follow @theblairconnection on Tik Tok!
What happens when the siblings of kids with the same terminal illness meet? I can say from experience, it’s awesome. No matter your age or interests, you immediately become best friends. At this year’s MPS Conference, I had the opportunity to meet several siblings. I didn’t get to… Read More
Jan. 1 always brings up difficult feelings for me. Even before Sanfilippo syndrome entered our lives, New Year’s was a holiday for reflection — which isn’t necessarily an easy thing to process. Each year, thoughts about what the coming year has in store flood my mind. Read More