Today, May 26th, marks one year since I launched The B.L.A.I.R. Connection. I’ve been overwhelmed by the support for the website, with over 5,000 visitors. I am also so grateful for the siblings who have contributed to the website in any way. To celebrate this milestone, I’d like to share my scrapbook of important events since I started the website. This scrapbook will be apart of my display at the FPS International competition in June. Here’s to adding many more pages in the future!
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The following blog was published by The B.L.A.I.R. Connection’s partner, Patient Worthy. Rebecca is big sister to 10-year-old Amanda who suffers from a rare form of epilepsy. The family travels far from home with assistance from Miracle Flights, the nation’s leading nonprofit flight organization, to reach the specialized care she… Read More
I always knew that without a cure, my sister’s time with us would be limited. And with this inevitable loss of my sweet Blair, there would be a funeral. While our family always aimed to think positively about Blair’s illness, this is the only detail about the end of her life that came to my mind often in the years before her passing. Read More