One Year of The B.L.A.I.R. Connection


Today, May 26th, marks one year since I launched The B.L.A.I.R. Connection. I’ve been overwhelmed by the support for the website, with over 5,000 visitors. I am also so grateful for the siblings who have contributed to the website in any way. To celebrate this milestone, I’d like to share my scrapbook of important events since I started the website. This scrapbook will be apart of my display at the FPS International competition in June. Here’s to adding many more pages in the future!

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Image for With The New Year Comes Difficult Feelings

With The New Year Comes Difficult Feelings

Jan. 1 always brings up difficult feelings for me. Even before Sanfilippo syndrome entered our lives, New Year’s was a holiday for reflection — which isn’t necessarily an easy thing to process. Each year, thoughts about what the coming year has in store flood my mind. Read More

Image for My Viral Mission

My Viral Mission

On December 21st, I started my mission to go viral. I posted daily for the next two weeks, and while I’m not viral yet, I wanted to share some of the videos I’ve been posting and the progress that I’ve made. Read More

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