The B.L.A.I.R. Connection Photo Hunt is a chance for siblings to reminisce on memories with their brother or sister. Each week in September, I will be posting photos of siblings doing different activities. If you’re the sibling of someone with a terminal illness, submit a photo each week based on the theme. For each week you participate, you can win one stress ball!
To learn about more opportunities like this one, join The B.L.A.I.R. Connection newsletter.
What happens when the siblings of kids with the same terminal illness meet? I can say from experience, it’s awesome. No matter your age or interests, you immediately become best friends. At this year’s MPS Conference, I had the opportunity to meet several siblings. I didn’t get to… Read More
Jan. 1 always brings up difficult feelings for me. Even before Sanfilippo syndrome entered our lives, New Year’s was a holiday for reflection — which isn’t necessarily an easy thing to process. Each year, thoughts about what the coming year has in store flood my mind. Read More