The following podcast was published by Courageous Parents Network, a destination created by parents, for parents, to support, guide and strengthen families as they care for a seriously ill child.
CPN has several blogs about siblings and this podcast includes two siblings talking about having a brother affected by Cerebral Palsy.
What happens when the siblings of kids with the same terminal illness meet? I can say from experience, it’s awesome. No matter your age or interests, you immediately become best friends. At this year’s MPS Conference, I had the opportunity to meet several siblings. I didn’t get to… Read More
Jan. 1 always brings up difficult feelings for me. Even before Sanfilippo syndrome entered our lives, New Year’s was a holiday for reflection — which isn’t necessarily an easy thing to process. Each year, thoughts about what the coming year has in store flood my mind. Read More