The following blog is from Siblings with a Mission, an international organization established to serve and support siblings of individuals with special needs. The website is a great resource and they have several blogs like this one, that give advice for different scenarios which siblings often face.
All four of us spent a lot of time in the hospital with my brother. We could not have imagined being anywhere else other than by his side. We were so blessed to have had such great doctors and nurses at this hospital – without them my brother would never have made it out as well as he did. His lungs even inflated back in half the time they were supposed to. No one could believe it – my brother was truly a strolling miracle.
As MPS siblings, we see our brothers or sisters spend a lot of time in and out of various doctor’s offices and hospitals. All this time away from home affects the entire family. Whether you are a younger or older sibling, it is important to remember to stay strong and be there for them as much as possible. Siblings have a strong bond and MPS siblings seem to have an even stronger one. Your siblings may or may not be able to talk back to you, but they do understand how you are feeling. It is important to be strong for them no matter the situation.
Anything that will allow your sibling to feel more comfortable will also help them feel better. And their happiness will make you feel better too. Happiness cannot cure MPS, nor does it make EVERYthing better, but it can make dealing with everything a little bit easier. Also during this time, please don’t forget your parents! They are stressing about your sibling, actually about you too, and they will definitely need help. Packing a bag for you and your sibling, if possible, is just one way that you can help your parents. You never know how long your hospital stay will be. Best of luck and remember: stay strong!