My Viral Mission

After my speech at the MPS Conference, someone asked, “Are you on Tik Tok yet?” I sort of laughed because I only knew the app for funny videos and dances. But when I talked to her afterwards, she emphasized what a great app it could be to reach more siblings. So the next day, on December 21st, I started my mission to go viral. I posted daily for the next two weeks, and while I’m not viral yet, I wanted to share some of the videos I’ve been posting and the progress that I’ve made. Today, I have close to 1,000 followers. If you want to help me on my “mission” and get sneak peeks of blogs before they are posted, follow @theblairconnection on Tik Tok!


12/21 4:53 pm

I just posted my first video. It’s a simple introduction to what I do and why I do it. It’s very eye-catching & powerful, but considering I have 1 follower (myself)… I’m not sure how this is going to work.


12/23 11:08 pm

Since Carter’s mom duetted my first video and I shared it with some friends, I have 31 followers! Progress. I just posted the second video of me reading a moving blog by Beckham O’Neill. I’m already working on the next one:)


12/24 2:54 pm

Today I posted about the week Blair passed away. I used a clip from my speech which I’m going to continue doing for a few more videos. I have 35 followers.


12/25 9:08 am

I posted a Christmas Tik Tok today about spending another Christmas without my sister. All of these videos are pretty powerful but it’s hard when they don’t get many views. I have 38 followers.


12/26 4:55 pm

I just posted a storytime type video, which I’m hoping might get more attention than my others. I have 50 followers now because I started following other accounts and they are returning the favor.


12/27 4:45 pm

Today I posted a clip from my speech at the Lysosomal World Symposium. It is the first part of a series from this speech. I’ve been following other accounts and I have 104 followers!!!


12/29 2:36 pm

I posted part two of my World Symposium speech today. I have 154 followers, which is awesome! Still going!


12/30 5:15 pm

I just posted a storytime video about thinking my sister was a spy. A few of my videos have over 200 views now! I have 198 followers.


12/31 2:05 pm

Today I duetted with a video on my For You page about a girl’s sister passing away. In the duet, I shared sibling support statistics and what I’m doing to help siblings. I currently have 249 followers.


1/1 1:08 pm

For the new year, I posted a clip from my MPS Conference speech. In it, I talk about my goals for the new year. I have 312 followers.


1/1 7:28 pm

I posted a second video today as well, giving a sneak peek of my Year in Review blog. At this point, I have 331 followers.


1/2 4:44 pm

Today I posted a little tour of my website. It’s not as interesting as my other videos so I’m not expecting much but I’m really trying to post daily. I have 423 followers!


1/3 2:57 pm

I just posted a really powerful video of me lip syncing to a song in the car to Blair. The text on the video gives an overview of my story again just in case people who don’t follow me see it. I have over 500 followers now!

(this one got copyrighted on YouTube so here’s the Google Drive link)

Singing to Blair – Tik Tok


1/4 11:00 am

My video from yesterday got a lot more attention than usual and I gained some followers! Today, I posted a video giving a sneak peek to a blog I’m working on called “The Pile-On Effect.” I have 749 followers!


Remember to follow @theblairconnection for more videos like these!

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Finding the Unity in Disability

If I don’t have a topic in mind when it’s time to write a column, I read articles. I look into the lives of other siblings of special needs individuals, delving into the struggles, pains, and joys of their respective experiences. From this, I usually find something that I can relate to in my own life, and I let the writing guide me to my own ideas. Read More

Image for Running Out of Pictures

Running Out of Pictures

Now that my sister is gone, photos are one of the main ways I feel that I can connect with her. Whenever I’m missing Blair, I look through old photos and memories. I find it healing to edit photos of us creatively to be symbolic and make it feel new. Here are some of those edits. Read More

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