“My sister, Blair, and all terminally ill children have these incredible traits. Something that many don’t realize is that their siblings do as well, but are often overlooked. The mission of this website is to give siblings a place to connect with others and find additional support as they experience the challenges of having a terminally ill brother or sister.” - Grey

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We Do Our Part for Haidyn

Due to the Coronavirus, many have been social distancing for months now. We take this seriously for kids like Haidyn, with Sanfilippo Syndrome. While we may not be required to stay home anymore, I will keep sharing the stories of Sanfilippo families like mine as a reminder to do your part and be cautious for the sake of others. Here's why you should do your part for Haidyn. Read More

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We Stay Home for Seth.

Due to the Coronavirus, many have been social distancing for weeks now. Staying home is much more critical for kids like Seth, who has Sanfilippo Syndrome. Here's how the Karlsons' lives have changed because of the Coronavirus - and why you should stay home for Seth. Read More

CPN Podcast

I had the pleasure of sitting down with the Outreach Coordinator of CPN for an interview a few months ago. We compared our journeys of turning pain into passion and discussed the feelings of “super siblings”. Today, Courageous Parents Network posted the podcast in honor of National Siblings Day. Read More