“My sister, Blair, and all terminally ill children have these incredible traits. Something that many don’t realize is that their siblings do as well, but are often overlooked. The mission of this website is to give siblings a place to connect with others and find additional support as they experience the challenges of having a terminally ill brother or sister.” - Grey

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Inspired – the story of a sibling from Portugal

Hello, my name is Sofia and I’m 10 years old. I’m from Portugal and I’m learning English. I have a sister named Joana, she is 15 years old and suffers from a rare disease called Sanfilippo syndrome. My favorite place to go with her is the beach, especially… Read More

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Like a Rock in Your Pocket

Looking at the world of rare diseases and serious illnesses in children, so much of the focus jumps to the child with the diagnosis, and then to the parents. Usually, this isn’t intentional…it’s just the way it seems to work. Bit by bit, it’s easy for siblings to… Read More

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Go Higher

One gene One cell One little mishap One gone wrong None goes well   The disease The struggle Come together Make their lives For the better   A… Read More