Brave.
Loving.
Amazing.
Inspiring.
Relentless.

“My sister, Blair, and all terminally ill children have these incredible traits. Something that many don’t realize is that their siblings do as well, but are often overlooked. The mission of this website is to give siblings a place to connect with others and find additional support as they experience the challenges of having a terminally ill brother or sister.” - Grey


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When Super Sibs Meet

What happens when the siblings of kids with the same terminal illness meet? I can say from experience, it’s awesome. No matter your age or interests, you immediately become best friends.  At this year’s MPS Conference, I had the opportunity to meet several siblings. I didn’t get to… Read More

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With The New Year Comes Difficult Feelings

Jan. 1 always brings up difficult feelings for me. Even before Sanfilippo syndrome entered our lives, New Year’s was a holiday for reflection — which isn’t necessarily an easy thing to process. Each year, thoughts about what the coming year has in store flood my mind. Read More

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My Viral Mission

On December 21st, I started my mission to go viral. I posted daily for the next two weeks, and while I’m not viral yet, I wanted to share some of the videos I’ve been posting and the progress that I’ve made. Read More