As the end neared closer, things started to fade. The laughter began to fade, the smiles began to fade, those bright blue eyes began to...

The following blog is from Siblings with a Mission, an international organization established to serve and support siblings of...

Once Abby lost her speech, I had to grieve this part of our relationship. Luckily, her eyes tell a story.

Super sibs often act as a caregiver for their terminally ill brother or sister. This is Keenan and Connor's story.

The door to Ben's room was always open. It was open to anyone willing to watch Cake Boss. Or anyone willing to enthusiastically yell ‘Bum...

I often get goosebumps when I see how similar our lives really are as super siblings. Regardless of age, we all have so much in common.

Four. I was four years old when my sister was diagnosed with a terminal illness. I no longer had the privilege of being protected from...

Ben and I were best friends, we did everything together. Each day I would come home from school and stay in his room until it was time to...

In December of 2019, I had the opportunity to meet and hang out with several super siblings. It's always amazing to see how similar we...

Two years ago, Sofia Marques contacted me from Portugal. She had written a blog about her sister Joanna, who has Sanfilippo Syndrome. At...

I recently had the opportunity to participate in a Zoom session facilitated by Courageous Parents Network called "What Siblings Want."...

Today is my sister’s birthday in Heaven. In April, on the anniversary of her passing, I wrote on social media about feeling an obligation...

The following is a Q&A with Breanna Yang, whose brother and built-in best friend Bryson passed away from cancer when she was 15 years...

Grey Chapin started the Purple Lemonade Stand at age six after her sister, Blair, was diagnosed with Sanfilippo Syndrome. Sanfilippo...

When I was two years old, my younger brother Barry was born. We developed a beautiful bond; one that was distinctly silent. As a newborn,...

Growing up, I was not the best sister to Abby. Having a sibling with special needs is difficult, and I struggled a lot with it.

My greatest fear is forgetting. Forgetting the sound of her laugh, the feeling of holding her hand, forgetting her face.

Super siblings like my daughter, Sophia, are often overlooked. This is why they deserve so much more.

Courageous Parents Network provides support for parents of children with a serious illness. This resource was part of the inspiration in...

While we may not be required to stay home anymore, I will keep sharing the stories of Sanfilippo families like the Fowlers.