Recently, I had the opportunity to be interviewed by the President of the Cure Sanfilippo Foundation, Glenn O’Neill. The foundation...

Welcome to The B.L.A.I.R. Connection’s second collection, The Be You Collection. The goal of collections is to provide siblings an easy...

Part one of the Be You Collection: Which three words would you use to describe yourself?

Part two of the Be You Collection: What is your favorite hobby?

Part three of the Be You Collection: What are your passions?

Part four of the Be You Collection: What are you interested in?

Part five of the Be You Collection: What are your goals?

Dear Blair, Today marks two years since you went to heaven. That number doesn’t seem real to me. It feels like just last night I was...

On Monday, February 4th, I had the opportunity to speak in front of doctors, scientists, and lysosomal disease families about sibling...

Welcome to the newest addition to The B.L.A.I.R. Connection website, the “Be Positive” Collection. I am hoping to publish more...

What is your favorite memory with your sibling? 1st question of the ‘Be Positive‘ Collection Sophia Sarkar: My favorite memory with...

What is/was your favorite activity to do with your sibling? 2nd question of the ‘Be Positive‘ Collection Sophia Sarkar: I love to run...

What is/was your favorite place to go with your sibling? 3rd question of the ‘Be Positive‘ Collection Sophia Sarkar: Disney World is my...

What is/was your favorite show or movie to watch with your sibling? Book to read? 4th question of the ‘Be Positive’ Collection Sophia...

In what ways did your sibling change you for the better? 5th question of the ‘Be Positive‘ Collection Sophia Sarkar: Having Carter as my...

The B.L.A.I.R. Connection is a support website for siblings of terminally ill children. I started this website in April of 2018, but it...

This is Sophia. Her little brother, Carter, has Sanfilippo Syndrome. Their family has been working to fund a cure to save Carter. Their...

Jealousy. It’s a feeling that we, as the siblings of those who are terminally ill, must hide… yet we go through it all the time. When...

Today is April 4th. One year ago, my sweet sister went to heaven. This has been a year of firsts. First summer without Blair, first...