Five years ago today, I entered a new chapter in my life. It was more heartbreakingly clear to me, on that day, that a chapter had ended....

Music has always moved me; my sister and I had this in common. I can always rely on music for unexpected, powerful reminders of her. I’ve...

Four. I was four years old when my sister was diagnosed with a terminal illness. I no longer had the privilege of being protected from...

My greatest fear is forgetting. Forgetting the sound of her laugh, the feeling of holding her hand, forgetting her face.

A few weeks ago, I broke down in class. It really made me rethink the role of school in the life of a super sibling.

Former President George W. Bush is a super sib just like us, his sister passed away at a young age. So, I asked him for an interview.

What happens when the siblings of kids with the same terminal illness meet? Well, you become best friends.

After my speech at the MPS Conference, someone asked, “Are you on Tik Tok yet?” I laughed at first, but now... I'm trying to go viral.

Happy New Year! It’s officially 2020, and while thinking of my personal resolutions, this website is a significant part.

On December 20th, I had the opportunity to speak to MPS siblings from all over the country. I spoke candidly about regrets and goals.

One of the hardest parts about losing a loved one is the wondering. Today would be my sister's 18th birthday.

A Blair that knows what she wants and loves to tell stories.

A Blair that is in love with animals and her family.

A Blair that goes with the flow and loves to make connections.

Blair and I always shared a love for music. Here's a playlist of songs that remind me of Blair.

A few weeks ago, I had the opportunity to be an exhibitor at the Child Life Conference in Orlando. I got to meet several Child Life...

The B.L.A.I.R. Connection Photo Hunt is a chance for siblings to reminisce on memories with their brother or sister. Each week in...

Grey Chapin 4th Grade English December 12, 2013 My Sister’s Seizure Have you ever had a scary event in your life, but it ended up making...

I am very excited to announce that I will be starting a quarterly newsletter to keep siblings updated on The B.L.A.I.R. Connection. The...

This is the report that I submitted to judges at the Future Problem Solving International Competition. The document goes into depth about...

I always knew that without a cure, my sister’s time with us would be limited. And with this inevitable loss of my sweet Blair, there...

Today, May 26th, marks one year since I launched The B.L.A.I.R. Connection. I’ve been overwhelmed by the support for the website, with...

www.HenryAndBlair.com Yesterday, the Cure Sanfilippo Foundation launched an awareness campaign about my dog, Henry, and his relationship...

May is Mental Health Month. While preparing for a presentation in February, I found several statistics about siblings of the terminally...