top of page
Search


CPN Podcast: Jennifer Siedman and Grey Chapin
Courageous Parents Network provides support for parents of children with a serious illness. This resource was part of the inspiration in...

Grey Chapin
Jun 14, 2020


We Do Our Part for Haidyn
While we may not be required to stay home anymore, I will keep sharing the stories of Sanfilippo families like the Fowlers.

Grey Chapin
May 31, 2020


We Stay Home for Seth.
Staying home during this pandemic is much more important for the Karlsons. Here's why you should stay home for Seth.

Grey Chapin
Apr 25, 2020


We Stay Home for Will.
Staying home during this pandemic is much more important for the Byers. Read about how the Coronavirus has affected them.

Grey Chapin
Apr 8, 2020


We Stay Home for Carter.
Staying home during this pandemic is much more important for the Sarkars. This is why you should stay home.

Grey Chapin
Apr 1, 2020


School After Loss
A few weeks ago, I broke down in class. It really made me rethink the role of school in the life of a super sibling.

Grey Chapin
Mar 1, 2020


The Day Sanfilippo Won
Super sibs are expected to be strong, but sometimes, Sanfilippo can get the best of you. This is the day Sanfilippo won.

Emily Wallis
Feb 16, 2020


Pitching a Super Sib President
Former President George W. Bush is a super sib just like us, his sister passed away at a young age. So, I asked him for an interview.

Grey Chapin
Jan 26, 2020


When Super Sibs Meet
What happens when the siblings of kids with the same terminal illness meet? Well, you become best friends.

Grey Chapin
Jan 19, 2020


With The New Year Comes Difficult Feelings
While New Year's is a celebration for most, it is a time of reflection for super sibs.

Emily Wallis
Jan 12, 2020


My Viral Mission
After my speech at the MPS Conference, someone asked, “Are you on Tik Tok yet?” I laughed at first, but now... I'm trying to go viral.

Grey Chapin
Jan 6, 2020


2019 Year in Review
Happy New Year! It’s officially 2020, and while thinking of my personal resolutions, this website is a significant part.

Grey Chapin
Jan 1, 2020


MPS Sibling Speech
On December 20th, I had the opportunity to speak to MPS siblings from all over the country. I spoke candidly about regrets and goals.

Grey Chapin
Dec 26, 2019


Imagined Versions of My Sister
One of the hardest parts about losing a loved one is the wondering. Today would be my sister's 18th birthday.

Grey Chapin
Dec 21, 2019
Version One
A Blair that knows what she wants and loves to tell stories.

Grey Chapin
Dec 21, 2019
Version Two
A Blair that is in love with animals and her family.

Grey Chapin
Dec 21, 2019
Version Three
A Blair that goes with the flow and loves to make connections.

Grey Chapin
Dec 21, 2019


How Sanfilippo Syndrome Has Shaped My Concept of Sisterhood
It’s easy to become envious of others who have amazing relationships with their sisters.

Emily Wallis
Dec 1, 2019


National Caregiver Month: Kaitlyn
To care for Blair, you had to receive the official stamp of approval. This approval was from Blair's sister, nine-year-old Grey.

Kaitlyn Steininger
Nov 23, 2019


Grey’s Playlist
Blair and I always shared a love for music. Here's a playlist of songs that remind me of Blair.

Grey Chapin
Nov 10, 2019
Blog
Featured
Super Sibs
bottom of page