Courageous Parents Network provides support for parents of children with a serious illness. This resource was part of the inspiration in creating The B.L.A.I.R. Connection, and I encourage anyone to explore the website for unique perspectives and important conversations.
In this episode, CPN’s Jennifer Siedman talks with Grey Chapin, founder of The B.L.A.I.R. Connection, a digital resource to support siblings as they experience the challenges of having a terminally ill brother or sister. Jennifer is the mother to three – Noah and Isabelle, and their brother Ben, who died in 2014 from Sanfilippo Syndrome. Grey is the younger sister of Blair, who also had Sanfilippo Syndrome and died in 2017.