About Me


Which three words would you use to describe yourself?

1st question of the Be You Collection

 

Kaylei McGarrett is 23 years old. She was 20 when her brother, Nathaniel, was diagnosed with Pleomorphic Liposarcoma. He had just turned 13 and unfortunately passed away in 2017.

Kaylei is Bubbly, Caring, and Dedicated.

 

Chloey Rudy is 13 years old and her sister had her first seizure when Chloey was four.

Chloey is Caring, Defensive, and Fun.

 

Matthew Moon is six years old and his brother, Jacob, was diagnosed with Sanfilippo Syndrome at age seven. Matthew was four years old.

Matthew is Funny, Smart, and Kind.

 

Ella Moon (sister to Matthew and Jacob)  is 11 years old and in 6th grade. She was nine when Jacob was diagnosed.

Ella is Funny, Sporty, and Kind.

 

Jan Ballbé is 16 years old and he was 14 when his sister was diagnosed with MSD.

 

Grey Chapin is 15 years old, a freshman in high school. Her sister Blair was diagnosed with Sanfilippo Syndrome when she was six. Grey was four at the time of diagnosis.

 

Nic Bouzakis is 15 years old and he was 10 when his brother, Greco, was diagnosed.

Nic is Caring, Tough, and Happy.

 

Next Question: What is your favorite hobby?


Image for Father’s Day

Father’s Day

Rebecca is big sister to 10-year-old Amanda who suffers from a rare form of epilepsy. The family travels far from home with assistance from Miracle Flights, the nation’s leading nonprofit flight organization, to reach the specialized care she needs to get well. Read More

Image for My Sister’s Funeral

My Sister’s Funeral

I always knew that without a cure, my sister’s time with us would be limited. And with this inevitable loss of my sweet Blair, there would be a funeral. While our family always aimed to think positively about Blair’s illness, this is the only detail about the end of her life that came to my mind often in the years before her passing. Read More

Have a story to share?