About Me


Which three words would you use to describe yourself?

1st question of the Be You Collection

 

Kaylei McGarrett is 23 years old. She was 20 when her brother, Nathaniel, was diagnosed with Pleomorphic Liposarcoma. He had just turned 13 and unfortunately passed away in 2017.

Kaylei is Bubbly, Caring, and Dedicated.

 

Chloey Rudy is 13 years old and her sister had her first seizure when Chloey was four.

Chloey is Caring, Defensive, and Fun.

 

Matthew Moon is six years old and his brother, Jacob, was diagnosed with Sanfilippo Syndrome at age seven. Matthew was four years old.

Matthew is Funny, Smart, and Kind.

 

Ella Moon (sister to Matthew and Jacob)  is 11 years old and in 6th grade. She was nine when Jacob was diagnosed.

Ella is Funny, Sporty, and Kind.

 

Jan Ballbé is 16 years old and he was 14 when his sister was diagnosed with MSD.

 

Grey Chapin is 15 years old, a freshman in high school. Her sister Blair was diagnosed with Sanfilippo Syndrome when she was six. Grey was four at the time of diagnosis.

 

Nic Bouzakis is 15 years old and he was 10 when his brother, Greco, was diagnosed.

Nic is Caring, Tough, and Happy.

 

Next Question: What is your favorite hobby?


The Unknown

This blog is by Chloey Rudy, an 8th grader that I met while competing at the Florida Future Problem Solving competition in March. While many people were interested in hearing about my project, Chloey had a special connection. After telling her about the website, she shared her experiences as a… Read More

Image for Henry & Blair

Henry & Blair

Yesterday, the Cure Sanfilippo Foundation launched an awareness campaign about my dog, Henry, and his relationship with Blair. My sister, Blair, and Henry were best friends and he misses her so much ever since she passed away due to Sanfilippo in 2017. Learn more about their one of a kind bond in this video and share to raise awareness for Sanfilippo Syndrome. Read More

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