About Me


Which three words would you use to describe yourself?

1st question of the Be You Collection

 

Kaylei McGarrett is 23 years old. She was 20 when her brother, Nathaniel, was diagnosed with Pleomorphic Liposarcoma. He had just turned 13 and unfortunately passed away in 2017.

Kaylei is Bubbly, Caring, and Dedicated.

 

Chloey Rudy is 13 years old and her sister had her first seizure when Chloey was four.

Chloey is Caring, Defensive, and Fun.

 

Matthew Moon is six years old and his brother, Jacob, was diagnosed with Sanfilippo Syndrome at age seven. Matthew was four years old.

Matthew is Funny, Smart, and Kind.

 

Ella Moon (sister to Matthew and Jacob)  is 11 years old and in 6th grade. She was nine when Jacob was diagnosed.

Ella is Funny, Sporty, and Kind.

 

Jan Ballbé is 16 years old and he was 14 when his sister was diagnosed with MSD.

 

Grey Chapin is 15 years old, a freshman in high school. Her sister Blair was diagnosed with Sanfilippo Syndrome when she was six. Grey was four at the time of diagnosis.

 

Nic Bouzakis is 15 years old and he was 10 when his brother, Greco, was diagnosed.

Nic is Caring, Tough, and Happy.

 

Next Question: What is your favorite hobby?


Photo Hunt Giveaway

The B.L.A.I.R. Connection Photo Hunt is a chance for siblings to reminisce on memories with their brother or sister. Each week in September, I will be posting photos of siblings doing different activities. If you’re the sibling of someone with a terminal illness, submit a photo each week based on… Read More

Image for The Scariest Night: My Perspective at Age 9

The Scariest Night: My Perspective at Age 9

Have you ever had a scary event in your life, but it ended up making you feel more confident? One summer night, my mom and I did. That night, I was lying in my bed as quiet as a mouse. Blair was in her room, my mom was downstairs, and my dad was out of town (three hours away). I would never guess that this crazy night would change my life, forever. Read More

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