About Me


Which three words would you use to describe yourself?

1st question of the Be You Collection

 

Kaylei McGarrett is 23 years old. She was 20 when her brother, Nathaniel, was diagnosed with Pleomorphic Liposarcoma. He had just turned 13 and unfortunately passed away in 2017.

Kaylei is Bubbly, Caring, and Dedicated.

 

Chloey Rudy is 13 years old and her sister had her first seizure when Chloey was four.

Chloey is Caring, Defensive, and Fun.

 

Matthew Moon is six years old and his brother, Jacob, was diagnosed with Sanfilippo Syndrome at age seven. Matthew was four years old.

Matthew is Funny, Smart, and Kind.

 

Ella Moon (sister to Matthew and Jacob)  is 11 years old and in 6th grade. She was nine when Jacob was diagnosed.

Ella is Funny, Sporty, and Kind.

 

Jan Ballbé is 16 years old and he was 14 when his sister was diagnosed with MSD.

 

Grey Chapin is 15 years old, a freshman in high school. Her sister Blair was diagnosed with Sanfilippo Syndrome when she was six. Grey was four at the time of diagnosis.

 

Nic Bouzakis is 15 years old and he was 10 when his brother, Greco, was diagnosed.

Nic is Caring, Tough, and Happy.

 

Next Question: What is your favorite hobby?


Image for Finding the Unity in Disability

Finding the Unity in Disability

If I don’t have a topic in mind when it’s time to write a column, I read articles. I look into the lives of other siblings of special needs individuals, delving into the struggles, pains, and joys of their respective experiences. From this, I usually find something that I can relate to in my own life, and I let the writing guide me to my own ideas. Read More

Image for Running Out of Pictures

Running Out of Pictures

Now that my sister is gone, photos are one of the main ways I feel that I can connect with her. Whenever I’m missing Blair, I look through old photos and memories. I find it healing to edit photos of us creatively to be symbolic and make it feel new. Here are some of those edits. Read More

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