What are your goals?
5th question of the Be You Collection
Kaylei McGarrett: Through my brother’s diagnosis I found the wonderful world of child life. I have dedicated the last 4 years to making a pathway so that I too can be a resource for families in need.
Chloey Rudy: I hope that I can be successful. Whatever I do, I want to expand my capabilities and reach my full potential whenever it comes to my future.
Matthew Moon: I want to be an author when I grow up. I want to write funny stories that make people laugh.
Ella Moon: I would actually really like to play basketball in college but after that, I want to work with kids who have special needs or start some sort of project that spreads awareness about Sanfilippo.
Jan Ballbé: I want to be a fireman.
Grey Chapin: I hope to continue this website for many years to come. While it is currently mainly known within the Sanfilippo community, my goal is to spread the word about this resource to all siblings of terminally ill children. I believe that if the mission of my site is spread around the world, more resources will be created for siblings and they will no longer feel alone.
Nic Bouzakis: I hope to go to Ohio state for wrestling and win the Olympics.
What happens when the siblings of kids with the same terminal illness meet? I can say from experience, it’s awesome. No matter your age or interests, you immediately become best friends. At this year’s MPS Conference, I had the opportunity to meet several siblings. I didn’t get to… Read More
Jan. 1 always brings up difficult feelings for me. Even before Sanfilippo syndrome entered our lives, New Year’s was a holiday for reflection — which isn’t necessarily an easy thing to process. Each year, thoughts about what the coming year has in store flood my mind. Read More