Goals


What are your goals?

5th question of the Be You Collection

 

Kaylei McGarrett: Through my brother’s diagnosis I found the wonderful world of child life. I have dedicated the last 4 years to making a pathway so that I too can be a resource for families in need.

Chloey Rudy: I hope that I can be successful. Whatever I do, I want to expand my capabilities and reach my full potential whenever it comes to my future.

Matthew Moon: I want to be an author when I grow up. I want to write funny stories that make people laugh.

Ella Moon: I would actually really like to play basketball in college but after that, I want to work with kids who have special needs or start some sort of project that spreads awareness about Sanfilippo.

Jan Ballbé: I want to be a fireman.

Grey Chapin: I hope to continue this website for many years to come. While it is currently mainly known within the Sanfilippo community, my goal is to spread the word about this resource to all siblings of terminally ill children. I believe that if the mission of my site is spread around the world, more resources will be created for siblings and they will no longer feel alone.

Nic Bouzakis: I hope to go to Ohio state for wrestling and win the Olympics.

 

Read The Be Positive Collection


Image for Father’s Day

Father’s Day

Rebecca is big sister to 10-year-old Amanda who suffers from a rare form of epilepsy. The family travels far from home with assistance from Miracle Flights, the nation’s leading nonprofit flight organization, to reach the specialized care she needs to get well. Read More

Image for My Sister’s Funeral

My Sister’s Funeral

I always knew that without a cure, my sister’s time with us would be limited. And with this inevitable loss of my sweet Blair, there would be a funeral. While our family always aimed to think positively about Blair’s illness, this is the only detail about the end of her life that came to my mind often in the years before her passing. Read More

Have a story to share?