Goals


What are your goals?

5th question of the Be You Collection

 

Kaylei McGarrett: Through my brother’s diagnosis I found the wonderful world of child life. I have dedicated the last 4 years to making a pathway so that I too can be a resource for families in need.

Chloey Rudy: I hope that I can be successful. Whatever I do, I want to expand my capabilities and reach my full potential whenever it comes to my future.

Matthew Moon: I want to be an author when I grow up. I want to write funny stories that make people laugh.

Ella Moon: I would actually really like to play basketball in college but after that, I want to work with kids who have special needs or start some sort of project that spreads awareness about Sanfilippo.

Jan Ballbé: I want to be a fireman.

Grey Chapin: I hope to continue this website for many years to come. While it is currently mainly known within the Sanfilippo community, my goal is to spread the word about this resource to all siblings of terminally ill children. I believe that if the mission of my site is spread around the world, more resources will be created for siblings and they will no longer feel alone.

Nic Bouzakis: I hope to go to Ohio state for wrestling and win the Olympics.

 

Read The Be Positive Collection


The Unknown

This blog is by Chloey Rudy, an 8th grader that I met while competing at the Florida Future Problem Solving competition in March. While many people were interested in hearing about my project, Chloey had a special connection. After telling her about the website, she shared her experiences as a… Read More

Image for Henry & Blair

Henry & Blair

Yesterday, the Cure Sanfilippo Foundation launched an awareness campaign about my dog, Henry, and his relationship with Blair. My sister, Blair, and Henry were best friends and he misses her so much ever since she passed away due to Sanfilippo in 2017. Learn more about their one of a kind bond in this video and share to raise awareness for Sanfilippo Syndrome. Read More

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