Two Year Update: Sofia is an author!
Two years ago, Sofia Marques contacted me from Portugal. She had written a blog about her sister Joanna, who has Sanfilippo Syndrome. At the time, Sofia was a ten-year-old learning English; now, she's an author! With the goal of raising funds and awareness for Sanfilippo, Sofia created a book called "My Life with My Sister." Watch the video below to learn more about the process and listen to an incredible song written by Sofia.
I see my sister and I in every one of these pages -- proof of how connected we are in our experiences as super siblings. Hope this touches all of you like it touched me!
You can also support Sofia by purchasing the book with this link!