Version Three


What’s up!? Today is my birthday! I’m 18! Now, I can vote, get a tattoo, and go to jail!!! I better be careful. This birthday is a little bit of a reality check that I need to start preparing for college. I will be living alone, no parents! That is exciting but scary. I don’t know if I’m ready. Luckily, I won’t be too far away. I’m going to the University of Miami! Go Canes! I think I will be very happy in Miami. My grandparents say it’s a party school… but what’s wrong with that? I’m all about having fun. High school has definitely been fun. I haven’t played any serious sports, but I go to almost every game at school and cheer the teams on. It’s going to be weird leaving Lake Highland after 14 years. All my friends are here. I’m having them all over tonight to celebrate my birthday! 100 people are coming!!! It’s going to be so fun. It looks like most of my friends and I will be going separate ways after high school, but we are already planning ways to see each other. First of all, we want to go to Mexico for our senior trip. And, we all want to study abroad in Florence sophomore year! I know I will make new friends in Miami too, though. I have never had a problem with that. That’s what makes me most excited about college, making new connections. I don’t know what I’ll be studying yet, even though eeeeveryone keeps asking. After college, I think I’ll go live in New York City. No matter what I decide to do with my life, I will be able to find opportunities there. I’ll travel as much as I can, and maybe end up back in Orlando. I have no idea. Right now, I’m just going with the flow and enjoying my last months of high school.

XOXO,

Bday Girl


Image for When Super Sibs Meet

When Super Sibs Meet

What happens when the siblings of kids with the same terminal illness meet? I can say from experience, it’s awesome. No matter your age or interests, you immediately become best friends.  At this year’s MPS Conference, I had the opportunity to meet several siblings. I didn’t get to… Read More

Image for With The New Year Comes Difficult Feelings

With The New Year Comes Difficult Feelings

Jan. 1 always brings up difficult feelings for me. Even before Sanfilippo syndrome entered our lives, New Year’s was a holiday for reflection — which isn’t necessarily an easy thing to process. Each year, thoughts about what the coming year has in store flood my mind. Read More

Have a story to share?